ME Stories

I'm still undiagnosed. 20 years. I'm an all or nothing person. I go until I fall; or seizure (tonic clonic fits from extreme exertion) When I'm well I can't imagine being sick. When I'm sick I can't imagine what it's like to be well. By well I mean: wash your hair and shave your legs in the shower, hang out washing without lying on the grass, stand washing dishes or cooking dinner; walking from car to the movie theatre, participate in large family gatherings. By sick I mean: getting up nauseous and sitting with head on the table during breakfast, getting to my customer and phoning to say I'm not coming in, because I can't walk the few metres to the building, not being able to remember how to get out of town or people's names, feeling like I'm having a heart attack or adrenaline rushes and feeling like I'm upside down when I brush my teeth.

I have an awesome supporter in the MS/ME Association in my area and I fit all the criteria for the diagnosis of Chronic Fatigue. In a 2 day Fatigue Study at a University I finally got the confirmation that I needed that I have a definite exercise intolerance.

This enigmatic condition is troubling primarily because there are no 2 sufferers with the same set of symptoms. I'm fit and healthy (no co-morbidities) except when I'm not. I'm not a malingerer or hypochondriac. I'm sick. Well and truly. However, no one sees a cast or sling so how bad can it be?

Julia Rowland

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