ME Stories

After my neurologist diagnosed me with conversion disorder and told me all of my symptoms – including the neuropathic pain in my legs – were psychosomatic, I walked home from the office.

The walk was about a mile. As soon as I walked through the door, I collapsed. My brain and my spinal cord were burning. I was extremely sensitive to sound. I could not touch my chin to my chest. I was bedridden for five months.

It took me awhile to learn that my symptoms get worse with exertion because I had no doctor to tell me that. I have recovered to a certain degree but have never in the last four years been as well as I was the morning before that walk home from the neurologist. I will always wonder if things could have been different if my doctor had understood my disease and had advised me to rest. Or at least, he had truly listened.

2 COMMENTS ON THIS POST To “My last walk”

  • AliceF

    November 2, 2015 at 5:57 pm

    I’m so sorry that you had that awful experience and that you never really recovered from it. One of the worst things about this illness is that doctors don’t listen. I wish you the best.

  • Katherine Reynolds

    March 10, 2016 at 11:49 pm

    I’m so sorry this happened to you. My heart swelled with compassion. I was so lucky to have a neurologist tell me I might have Chronic Fatigue Syndrome and that some doctors believed in it and some didn’t. She did not offer me an opinion but the gift she gave me was a name, a possible diagnosis to track down. When I took that info back to my primary care doctor, she sent me to the M.E./CFS specialist in Houston. I was beyond blessed to have a physician in my city who had been treating the disease for twenty five years. No one thank God told me it was all in my head. I’m so very glad to know you have recovered somewhat. That’s very good news. Thank you for sharing your story.

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